Site Map

 

Buy my Book

" Endometriosis - One Woman's Journey"

This BEST-SELLING book is your guide to living with the everyday trials and tribulations of endometriosis.


 


Member Bios


Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?

Jennifer Lewis
Bucalu
Southern California
18 years
No
Yes
Yes



Site Owner

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Maggie Aikens
gizmocheeky
Montreal, Canada
Symptomatic at the age of 14, confirmed at age 21
No
FMS
Yes



Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Amanda
mandi19_83
Warner Robins, GA
Diagnosed 7 months ago
Yes
None
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Ananda
dragonspawn22@yahoo.com
In USA
I have had severe prob. since 12yr old I am 22 now nothing is working
I had two very young, thankful I did
IBS last time had surg. on endo found scar tissue had grown to bowels
No

 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Anita
Neets
Denver, Co
For a very long time, finally diagnosed almost 2 yrs ago
No
None
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Anna
annacousar
Nashville, TN / Charleston, SC
Symptoms since age 12, confirmed at 19
UNKNOWN
Depression, Anxiety, Anemic, Removal of Severe Dysplasia on the Cervix
No

 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Anne
Anne
St. Paul, Minnesota
Surgical dx in 95, ultrasound dx in 92, symptomatic since '80
No, Sadly
Chronic pain, depression
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Ashlee
acoolie22
Kentucky
1 Month
No
Cancer, MS
Yes
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Ashley
ashley
Spartaburg, SC
2 years
Unsure
Asthma
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Becky
Becky
San Diego, California
2 years in extreme pain, probably longer
Don't know
Migranes, hernia, pelvic inflammatory disease twice
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?

Brenda
Brenda Lee

Madison, Wi
Diagnosed in 1992
Have 3 children
Chronic abdominal and back pain resulting in narcotic abuse - 8yrs sobriety
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Donna C. Boggs
Donna
Springfield, IL
21 years
Yes, 2
None-perfect health except for Endo
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?

Gina Bradford
Georgi
Scottsboro, Alabama
Since starting my period at 11
Yes
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Rhonda Busser
rhondab
Windsor, Ohio
16 years
Yes, 2 beautiful boys
Chronic sinus headaches & infections, IBS, depression, chronic back pain
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Tracy Cannell
cannellt
Graham, WA
20 years
yes
DES Exposed
yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?

Other medical conditions
Hysterectomy?
Casey
NCBubbles00
North Carolina
9 years
Unknown
Allergies, IBS
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Chantel Castleman
Chantel
Northwest Indiana
Just diagnosed 11/04 but suffering a long time
Have two kids
Low thyroid
No

 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Heather Cathcart
heathermarie
Greensboro, NC
Diagnosed in 1999
Not sure

No

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Claudia
Morgann Ivy
Livonia Michigan
14 years
2
Ashtma/IBS
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Amber Davis
Amber
Davenport ,Iowa
6 years, I am now 23 yrs old
I had (1)Thank God
Yes
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Hysterectomy?
Dawn
DJ
Andover, New Jersey
Diagnosed 3 1/2 yrs ago
no luck thus far
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Deanna
Deanna17
Long Island, NY
Diagnosed in 1999, shown symptons since 1996
Not sure

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Debbie
Deb
Texas
2 yrs
2 living prior marriage
2 cyst on ovaries, pain has come back, twisted ovary
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Debbie
debbie22cunliffe
bolton united kingdom
Confirm in 98 but symptoms since i was 17
Yes with treatment
pelvic inflam.disease, p.s. ovaries
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kelly Dolinger
Jiastarsong/Jiastar
Monmouth County, NJ
Symptoms since teens ... diagnosed in 1998.
2 children/2 miscarriages
Probable Adenmyosis
No



Article Contributer
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Dolores
DoloresAnaya
Northern, CA
Symptomatic since 12yrs, diagnosed at 24, now 37
Son at 17yrs, 9 ectopic's and 1 miscarriage since
Chronic fatigue and chronic pain from Endo otherwise healthy
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jennifer Draper
poojend
Medina, NY
Haven't been dx yet.....
Not sure yet
PCO and Tuberous Sclerosis
No
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Patricia Goetz
starrynightinaug
Exeter
7 years
Unsure
Polysistic ovarian syndrome
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Nicky Goobie
Aqua23
Edmonton, AB
Have had excrutiating periods for 8 years just now being diagnosed
Unknown
IBS for past 9 years. Bipolar II for 9 years
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions

Hysterectomy?
Heather
Heather73
St. Louis Mo,
Diagnosed in 1988
Unknown
BCP and Ditropan XL for Endo on Baldder
No


 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Heather
MistressIsis
Boxborough, MA
Apparently since about 16
As far as I know
None, that I know of
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Heather
nynurse
NY
Diagnosed at 21
Don't know
PCOS
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Tracey Holliday
T^i^
London, England
Had it for 18 years, diagnosed for 8
No
Underactive Thyriod
No
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Donna Hughes
donnaliam1@aol.com
England
7 years
Not sure

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jackie
jax_ter
Houston, TX
Confirmed with first laparoscopy in 95
Yes, 2
Severe fatigue, PMDD
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jackie
MsEricaKane62647
Hamilton, NJ
5 years
No
Yes
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jamie

Blacksburg
1 year
Haven't tried

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jennifer
Jenn34
Michigan
Eight years
One I had very young, the second with lots of help
No
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Jill
Jill
Albany, NY
Confirmed since 2000 problems started at start of periods
Not sure
Asthma, mild autoimmune def, persistant sinus infections, allergies, IBS
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jody
jodika67
Holly Grove, VA
diagnosed 7/04 but had
1 daughter
symptoms since age 13
hypoglycemia, allergies, IBS, adhesiobs, ovarian cysts, adeno
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Joy
Joy
Wisconsin, US
17 years
No
Bartholins removed
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kara
Klyn
Florida
9 years
yes--3
GERD, Chronic Fatigue Syndrome
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Katie
KT Stern
Indiana
Trouble since I was 12, dx at 17 (9 years now)
2 Boys
CFS, Kidney problems, endo on my bladder
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Katrinka
shedreamsofwings
Kansas City Mo
I date the pain back to 13
not yet, not sure

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Amy Kim
AKim
St. Louis, MO
diagnosed age 17 (25 now)
hopefully someday soon

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kimberly
kjwatson
Osceola, AR
Diagnosed for 2 years, pain for 10
Don't know yet
Toxoplasmosis (treated)
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Carol Koenigsknecht
CarolK13
Georgia
Have been endo-symptom free since 1993 (had endo for 6 years)
No
Had Fibromyalgia and IBS
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Krista
Krista277
Northwestern Ontario
Now that I look back since I was 15, just diagnosed about a month ago
Yes, thankfully

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kristine
Kris
MD
Suffered for 21yrs. Diagnosed 1/4
Yes
Scolosis & Asthma
No

 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Laurie
Truax
Cornell, MI
Had surgery for it 2yrs ago and didn't know I had it till then
Uncertain
Allergies
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Meredith Lewis
Meredithtaz
Northern CA
5 years, but have had problems for over 10
not sure
IBS, arthritis
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Liz
liz26
austraila
10yrs
3 times

No

 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Marni
MarnigirlieTO
Toronto, Canada
Started at 15 had first lap. surgery when I was 31 and will be having again
Don't think so
Grave's Disease & Allergic to my own antibodies
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
marie
end_endo@hotmail.com
Indiana
14 years
no
scar tissue, migraines
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Marie Mccalligan
marie
Florida
since July 2002
I have one daughter
none
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Marisa
Risa
Los Angeles, CA
10 years
Don't know

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Marlyne
Marlynem@aol.com
Ft. Laud, FL
16
No
Adhesion
Yes
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Mekoe
~mekoe~
Northern California
One year
I hope so...
Anxiety, depression, asthma since endo, migraines
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Melanie
mporter3117
Indiana
At least 2 years
Don't have kids, but haven't tried
Bowel problems
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Melissa
nobbsie18
Wisconsin
Since I was 14 yrs old-four years
unknown
nothing
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Michelle
Michelley

Diagnosed in 1998, I think I have had Endo since the onset of my menses
One child

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Minnie
Holland
Phoenix, AZ
7 Years
Not sure
No
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Misty
cowgrl
Canada
9 Years
Have one daughter unknown if more are possible
Had endometritis (retained placenta) which complicated Endo
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Mary Morris
sweetpea1976
Vancouver, WA
Since I was 13, I'm now 29
2 beautiful boys
Arthritis and possible bi-polar syndrome and possible hysterectomy
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Devon Mottern
Motternlife
Pennsylvania
Symptoms since 14, confirmed endo at 21
One child
Depression and Anxiety
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Donna O
ilovebooks356@aol.com
Long Island, NY
About 8 years, officially diagnosed 3 years ago
1 Daughter 16yr old, 1 son 2yrs old
Fibroids recently removed
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Jennifer Lynn O'Brien
J-LO
Houston
For 6 years, but I i have only been diagnosed for 2 years.
Right now yes, but i don't know for how long.
Interstitial Cystitis
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Octobra
Octobra
LaCross, WI
Since I was 14, lap done in '99
Not sure
IBS, Chronic Fatigue
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Lori P.
lorikp
Washington
Diagnosed in March 2004
I have a daughter

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kim Pagano
Dak918@aol.com
South Flordia
16 years
yes, 3, all premature

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Laurie Penner
froggirl
Ontario,Canada
8 yrs
Not sure
Not sure
No

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Melissa R.
briskladycupid
Toronto, Canada
13 long years
Yes
Kidney complications from endo
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Phyllis
pam
Pennsylvania
probably a long time
yes, I have 3 sons
underactive thyroid, motility disorder of esophagus (diffuse esoph. spasms)
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Rina
Rinaboop
Westland, MI
Unsure
I have children
Asthma
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Rebecca
Rebecca957
Springfield, OH
diagnosed 1 yr ago, have probably had it for over 2 yrs
1 daugher and 1 miscarriage. No luck for 6 yrs now
allergies/asthma, hypothyroidism, anemia
No

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Lisa Seim
Lisi
Hawaii
17 years
No, have 2 adopted
Allergies,Fibroids,Ademyosis
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Lisa Smallwood
Wacres8492@aol.com
Amelia, Ohio
12 years
yes, I have 2 girls and 1 boy

No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Stacy

Missouri
known since i was 16, have had surgery 1 time and lupron shots now pain is
Yes, 3 thank god. I started
at 15
Asthma, allergies, IBS
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Christin Taylor
mamaof2
Indianapolis, IN
Diagnosed in March '04, been suffering since 99. I am 23!
Have 2,Thank God! perhaps unable to have more
Depression, severe pain (even w/treatment), back and hip pain w/cycle & ovu
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Lisa Tramontana
ltramont
Chicago
4 years
Unknown
Fibromyalgia, PLMD, IC, hypothyroid, scoliosis, depression
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions

Hysterectomy?
Lea Vincent
Lea
Kansas
16 years
Yes
Allergies, asthma, chronic fatigue, fibrom
No
 

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?

Wanda
wkfrain
Pennsylvania
Diagnosed at age 19, severe pain prior to that, 14 surgeries all toll
No
Depression, Chronic pelvic pain, Ovarian Remnant Syndrome
Yes

Name
Screenname
Location
How long you've had endo


Able to have kids?
Other medical conditions
Hysterectomy?

Wendy
Wendz
Australia
Diagnosed 2 months ago,but problems since day one of my periods
Don't know as yet
asthma,allergies,anemic
No

Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
Kristin Wilkinson
kristin
Waldorf, MD
2 years
Not sure
No
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
jackie
jjb
panama city beach
5 years
no
depression
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
Rebecca
rebecca78
Tennessee
diagnosed 1month ago : been sick a while.
Yes! One Son and stepdaughter IBS, depression
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
Doreen
Rennie
PA
3 YEARS
Dont know
underactive thyroid
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
Carol
carol73
Texas
19 years
Yes. 2 children
Adhesions since Hysterectomy in 2003.
Yes

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
Trish Ackermann
food4lifemom
Bullville, NY
20 years
one
Fibromyalgia, IBS, Arthritis
No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
Stephanie
lilsteph210
Southern California
Started age 13, Diagnosed age 20 Unknown
Several
No
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
AMY CAPEHART starsdreammagic
Chesapeake, VA
3 years
yes
ovarian cysts
No

 
Name
Screenname
Location
How long you've had endo

Able to have kids?

Other medical conditions
Hysterectomy?
 

Angela
Ange01430
Virginia, Minnesota
I'm not entirely sure, but I do know it's been atleast 2 years.
Not sure, my husband and I haven't tried yet.
None that I know of.

No

 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
 
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
   
Name
Screenname
Location
How long you've had endo
Able to have kids?
Other medical conditions
Hysterectomy?
 
   

Search Entire Site
Featured Articles

* What you don't know can hurt you
 -Jennifer Lewis 4/98
* Endometriosis and fatigue
 -Kelly Dolinger 8/01
*
Chronic pain and the family
 -Leslie F. Martel, Ph.D.

*
Acute versus chronic pain
 -Julie Zimmerman, PT



Previous Articles


Support this Site

*Click here to make a donation to support this site

*Have something to share?
Click here to submit your article to us


Members Bio's

* Click here to view our member bio's section

*If you want to add your information, click here


Ask Jenn

Do you have a question, comment, or need information?
Ask Jenn


If you have question or comments, please feel free to E-mail me
Copyright ©; 1999 - 2006 Jennifer Lewis Blog Login
Website managed by All Star Computer Repair
Disclaimer
I am not a physician and the advice found here on this web site, the message boards or the chat room,
do not take the place of your doctor's or medical professional's advice.
Please refer all questions of medical nature to your physician. --Jennifer Lewis